We are making an announcement this week about Jessica’s new rehabilitation program. The (IESCCG) Clinical Commissioning group are helping us to source a new baseline assessment of Jessica’s injury. (written November 1st, 2016)
Updated January 2017. Unfortunately, the assessment could not be organised and a suitable provider was not be found. The family had hoped that brain imagery would provide useful information in support of Jessica’s future treatment. The Icanho centre who are liaising with the family also discussed the use of such imagery. They explained when dealing with functional impairment, the patient already exhibits impairment. We still feel Jessica would benefit from such imagery to help the specialists focus on the most affected area of her brain. Our hope is this would help optimise her rehabilitation to best suit her needs.
Because Jessica had received anoxic hypoxic brain injury the consensus of opinion from the multidisciplinary team at IcanHo was that her impairment was due to widespread damage. Likely due to oxygen shortage during her cardiac arrest or time in CCU.
To date, Jessica has never had any nerve conduction velocity tests on her left side which is much weaker than her right. We have since found a specialist in London who will conduct that test. We are also keen and seek a report from a The Biodex System 4 Dynamometer test to assess muscle groups. To date, we have been unable to find any companies in Suffolk, Essex or Norfolk who have the equipment. Please contact me if you can do a Biodex test.
Two meetings with commissioners at the IESCCG.
- One concerning our original complaint of the Serious Incident at Ipswich Hospital.
- That report was conducted by staff at The Ipswich Hospital NHS Trust Internally.
- Our second was agree to the terms of reference (TOR) and discuss those findings.
Gerard Cronin report of the Investigation.
The investigator found the IESCCG closed Jessica’s Serious Incident on STEIS without any apparent concerns over its content. The family were involved in meetings at the Ipswich Hospital NHS Trust but were unaware Jessica’s (SIRI) investigation had been closed on STEIS.
We still remain concerned about the quality assurances which are in place at the IESCCG when assessing serious incident investigation reports.
Update July 2017 – Ipswich Commissioners.
As of July 2017, the IESCCG closed the door to any further involvement or Family engagement. We are hugely disappointed with the Commissioners, not least because at one stage early in 2016, some staff appeared to recognise our original complaints about The Ipswich Hospital NHS Trust. Their reluctance to help the family when promising oversight in a full and thorough investigation is an experience that supports what we were originally told.
“Don’t hold your breath” the CCG and Hospital are all under the same NHS Paymaster and when you start poking at the soft underbelly of the CCG, the door will be firmly closed. Which is what happened, the much-promoted ‘open and transparent’ process is ignored. The legitimate concerns we had raised about the defensive culture demonstrated by the Trust after serious patient harm had occurred was demonstrated at the highest level.
In line with the letter received from the CEO, Nick Hulme at The Ipswich Hospital NHS Trust, the investigation process into Jessica’s care and treatment had now concluded as far as the CCG were concerned. I filed my complaint with the PHSO in July 2017 as advised by the CCG. I have never heard from them (the PHSO) since my originally converstaion with them, when they told me “We don’t investigate if the GMC and NMC are already investigating“ Why not?